Former NRL player John Bilbija battles early onset dementia: ‘The lights are on but no one is home’

Former rugby league player John Bilbija is facing a heartbreaking battle with early onset dementia, a devastating consequence of the repeated head knocks he endured during his playing career. At just 65 years old, Bilbija’s condition has deteriorated to the point where he requires full-time care and is unable to perform basic tasks like feeding himself or dressing.

His wife, Michelle, paints a grim picture of his current state, describing him as a mere shell of the man he once was. The couple, who survive on meagre pensions and some assistance from the NDIS, have made the difficult decision to move to Penrith to escape the high costs of living in the city.

Despite the financial strain of caring for John, who has also been diagnosed with Parkinson’s disease, Michelle has chosen not to pursue legal action against the NRL. She believes that winning a court case won’t bring back the man she once knew and loved.

John was diagnosed with early onset dementia at the age of 56 and made the selfless decision to donate his brain to science after his passing. Michelle hopes that his contribution will lead to advancements in research and raise awareness among current players about the dangers of head injuries in the sport.

The NRL has implemented several rule changes in recent years to protect players from the impacts of concussion, but cases like John’s serve as a stark reminder of the long-term consequences of playing a high-contact sport.

The Bilbijas’ story is a tragic reminder of the toll that rugby league can take on its players, and serves as a call to action for increased awareness and player safety measures in the sport. As John’s health continues to decline, his family remains hopeful that his sacrifice will lead to positive change in the future.